CHAPTER 4
THE THERAPEUTIC RELATIONSHIP UNDER FIRE
Merrijoy Kelner
In Complementary and Alternative Medicine: Challenge
and Change edited by Merrijoy Kelner, Beverly Wellman. Harwood Academic
Publishers, a subsidary of Taylor & Francis, 2000
The relationship between doctors and their patients is
currently receiving a great deal of attention. Plays, films and books
are featuring the travails of patients who seek medical care and depicting
physicians as emotionally distant, abrupt, pompous, insensitive and
even incompetent (Consider for example: Wit an off-Broadway hit play
by Margaret Elson, Patch Adams a film starring Robin Williams, and a
recent Canadian book, Operating in the Dark by Lisa Priest). Indictments
of medicine and the physicians that practice it are cropping up everywhere
in North America, the United Kingdom and Europe. The notion that something
is seriously lacking in the doctor-patient-relationship seems to have
become thoroughly embedded in contemporary Western culture (Pietroni
1987).
At the same time that patients are criticizing the way
their physicians relate to them, we are witnessing a remarkable and
widespread surge of interest in complementary and alternative medicine
(CAM) and an increasing use of CAM practitioners (Eisenberg et al, 1993,
1998; McGregor and Peay, 1996; Lloyd et al, 1991; Thomas et al, 1991;
Mills and Peacock, 1997; Lewith and Aldridge, 1993; CTV/Angus Reid Group,
1997). One of the reasons that has been cited for the current attraction
to CAM practitioners is that they are more empathic and collaborative
than physicians and take a greater interest in the individual psycho-social
aspects of their patients' lives (Bakx, 1991; Oths, 1994). Patients
are said to choose CAM practitioners because they seek a more satisfying
therapeutic relationship (Brinkhaus et al, 1998). It has also been suggested
that the high degree of rapport that exists between the alternative
practitioner and his/her patient has a powerful placebo effect and may
indeed be the key factor in the ability of these practitioners to help
their patients (Ernst, 1995). However, the assumption that CAM patients
have more positive and valuable relationships with their practitioners
than do patients of family physicians has not yet been subjected to
rigorous research (Mitchell and Cormack, 1998). It is a notion that
requires serious examination rather than stereotypical thinking.
This paper will explore the nature of the therapeutic
relationship between patients of family physicians and patients of selected
alternative practitioners and compare the way these two sets of patients
perceive and describe their practitioners. Based on the assumptions
noted above, it can be expected that patients of CAM practitioners will
be more likely to describe their therapeutic relationships in a positive
manner and to depict them as collaborative, empathic and personal.
Models
Models of the therapeutic relationship have been developed
almost exclusively on the basis of the doctor-patient-relationship.
The three most commonly mentioned models are: the paternalistic, the
shared decision-making, and the consumerist. This paper looks not only
at the doctor-patient-relationship, but also at patient relationships
with a range of alternative practitioners, and examines the extent to
which the existing models can be applied to them.
The models reflect a variety of therapeutic relationships
and assume different degrees of importance depending on what is happening
in the society as a whole. As values shift, information explodes, chronic
illnesses increase and health care costs keep rising, models that were
useful for understanding therapeutic relationships in the past, become
less applicable. Now they need to be modified and expanded in order
to more accurately reveal the dynamics of these relationships in the
current environment.
The Paternalistic Model
Beginning in the 1950's, Parsons (1951) posited the relationship
between physicians and their patients as the functional interplay between
two social roles with inherent duties and responsibilities. The patient
assumes a "sick role" which exempts her/him from the normal
obligations of life, but in turn, is obliged to comply with the physician's
prescribed treatment and to strive to recover. While the patient always
has the option to refuse treatment, s/he is not involved in the process
of choosing among treatment options; the physician decides on the preferred
option and then presents it to the patient. Parsons later revised his
model to acknowledge the patient's participation in decision-making
in the context of chronic illness (Parsons, 1975), but he still viewed
the relationship as essentially a paternalistic one.
Paternalism, or medical professional dominance as it has
been called by some, (Freidson, 1970; Phillips, 1996) means that the
physician can override the choices of the patient when he/she judges
that it is for the patients own good. Authority is granted to
the physician by the patient because of his /her expert technical knowledge;
knowledge that is not available to the patient. The physician 'owns
' the technical expertise, while the patient's knowledge of the situation
is discounted as irrelevant. Gender, age, educational and ethnic differences
usually serve to exacerbate this imbalance of power (Haug, 1979; Emanuel
and Emanuel, 1992). In this model of the therapeutic relationship, physician-patient
interaction is said to be characterized by limited and didactic communication
on the part of the physician, reluctance to give sufficient information
to the patient about his/her condition, the use of medical jargon in
discussions with the patient, and evasion of direct questions about
diagnosis or treatment (Skipper, 1965).
The Shared Decision-Making Model
Szasz and Hollender (1956) have termed this the model
of mutual participation. In this shared approach, the physician's expertise
lies in his/her clinical knowledge, while the patient's expertise stems
from knowledge of the contextual facts about his/her own personal situation.
The role of the physician is to assist the patient (or the client) to
make the treatment choice that is most appropriate through an understanding
of how the medical information relates to his/her unique situation.
This kind of encounter is particularly suited to the management of most
chronic illnesses, where the patient's own experiences provide important
clues for therapy. The patient accepts responsibility for carrying out
changes in lifestyle recommended by the practitioner as part of the
therapy. Such a model requires that there be ongoing dialogue between
physician and patient (Katz, 1984). Several authors have delineated
variations on the shared decision making model. Some of the best known
are the contractual model outlined by Veatch (1972), Emmanuel and Emmanuel's
(1995) deliberative model and the conversation model advanced by Katz
(1984).
This model developed as a reaction to medical paternalism,
encouraged by concurrent social movements such as the growing emphasis
on individual rights, the civil rights movement of 1960's, the feminist
movement, and the general rise of consumerism in public life (Light,
1991; Reeder, 1972; Cogswell, 1988). In this model, the basis of the
relationship is a collaborative enterprise between physician and patient
in which consultation precedes decision-making and information is widely
shared.
While there seems to be considerable demand from the public
for this more collaborative approach to the doctor-patient-relationship,
there is empirical evidence that physicians do not always find it easy
to share power and decision making (McKinlay and Stoeckle, 1988). This
lack of congruence between patient expectations of the therapeutic relationship
and what doctors are actually able to provide often leads to frustration
on the part of physicians and dissatisfaction among patients (Taussig,
1980).
The Consumerist Model
In striking contrast to the paternalistic approach and
an extension of the shared decision-making pattern is the consumerist
model. It places decision-making firmly in the hands of the patient/consumer
(Emmanuel and Emmanuel, 1995). Physicians are viewed as service providers
in the sense that while the doctor outlines the relevant clinical information
to the patient, it is the patient who chooses the type of medical intervention
that s/he wants. It is then up to the doctor to execute the chosen option.
In the United States, scholars have noted that a new, more business-oriented
consumer model had been evolving with the growth of managed care and
changes in health care financing (McKinlay and Stoekle, 1988; Kronenfeld,
1997).
A consumerist model, however, is difficult to apply in
reality (Lupton et al, 1991). It assumes that patients always have well
defined, fixed values and needs that enable them to be certain of what
they want and thus all they need are the facts in order to choose a
therapy or treatment (Emmanuel and Emmanuel, 1995). Furthermore, this
model assumes that patients are always in a position of equal power
with their physicians. It presupposes that the patient is a well-educated,
assertive consumer who is able to challenge the doctor, to speak as
an equal and carry on a sophisticated dialogue about medical options.
This fails to take into account the uneducated and those from lower
socioeconomic classes or minority groups; the very people who most need
help but have the most difficulty in claiming and using medical services
(Williams, 1993, Lupton,1996). It also fails to acknowledge that patients
who are suffering from pain, distress and illness are usually fearful
and anxious and thus unable to clearly calculate the costs and benefits
of a particular treatment. Thus, while the consumerist model has value
in that it emphasizes the patient's right to self determination, it
does not adequately capture the situation for the majority of patients.
The question examined here is which model of the therapeutic
relationship best characterizes the needs and desires of health care
providers and their patients in today's society. A second, but no less
relevant question is what are the key elements of patient satisfaction
driving the need to reexamine this relationship? By expanding the kinds
of relationships beyond just doctors and their patients, the data presented
here can broaden the way we think about these models.
Patient Satisfaction
Analyses of modern medicine often point out that while
medicine is at a technological high point in its development, patient
satisfaction with medical care seems to be at an all time low (Balint
et al, 1993). Research on patient satisfaction with medical care (Lewis,
1994; Greene et al, 1994; Lupton, 1996)) makes it clear that patients
today want to have more personal, less distant relationships with their
physicians; more sharing of information; more time for consideration
of their individual needs, including psycho-social issues, and greater
opportunities to participate in decision- making. In other words, patients
are showing a preference for a model of care that most closely resembles
the shared decision-making one. However, the current economic pressures
on industrialized countries have made it difficult for physicians to
give patients the amount of time and attention required to deliver care
in this way.
It has been demonstrated that lack of satisfaction not
only influences the extent of adherence to therapeutic advice (Linn
et al, 1982; DiMatteo et al, 1985), but also that it frequently leads
to "doctor- shopping" (Kasteler et al, 1976; Haug and Lavin
1983) and to changing doctors (Marquis et al, 1983; Ware and Ross-Davies,
1983). In the present environment, with its constant flow of information
about alternative therapies and practitioners, some patients who are
dissatisfied with their doctor-patient-relationship are prompted to
consider changing from conventional medicine to other forms of health
care (Fulder, 1988; Sutherland and Verhoef, 1994). McGuire, (1988, p.
197) describes people who consult alternative practitioners as "contractors"
of their own care, making selective choices of therapies based on their
values and beliefs about health and illness. Kelner and Wellman (1997a)
refer to "smart consumers" who prefer to use their own judgement
and the guidance of personal referrals to make decisions about the type
of health care they will utilize.
Comparing Patients of Alternative Practitioners with
Patients of Family Physicians
At the outset of this comparison, the therapeutic relationships
between CAM practitioners and their patients were expected to closely
resemble the model of shared decision-making or the more extreme consumerist
model. In comparison, the therapeutic relationships between physicians
and their patients were still expected to adhere more closely to the
model of paternalism. This supposition is examined by comparing the
way patients of family physicians describe and evaluate their relationships
with their doctors, with the way that alternative patients talk about
their practitioners.
It was possible to make these comparisons on the basis
of a research project designed to investigate the health beliefs and
practices of a sample of 300 patients in the city of Toronto, Canada
during 1994-95. At the time, these patients were consulting either family
physicians (general practitioners) or one of four types of alterative
practitioners: chiropractors, acupuncturists/traditional Chinese doctors,
naturopaths or Reiki healers. These five types of practitioners were
selected to represent a broad spectrum of the many types of health care
currently available in Canadian society[1]. They ranged
from conventional medical care (family physicians) through a popular
form of physical manipulation (chiropractors) and mixed holistic care
(acupuncture/traditional Chinese medicine and naturopathy) to care characterized
mainly by emotional and spiritual healing (Reiki). The choice of alternative
practitioners was designed to reflect the spread from the most widely
accepted and legitimate (chiropractic) through to one of the least well
known and least institutionalized (Reiki). For a description of the
methodology used, see Kelner and Wellman, 1997a&b[2].
Comparing the Sample of Patients
Demographic characteristics - A comparison of the demographic
characteristics of those who were consulting alternative practitioners
with people who were seeing family physicians for their primary health
problem, reveals that there are marked differences between the two groups
of patients (see Kelner and Wellman 1997a).
The patients consulting alternative practitioners are
more likely to be female, young, married, highly educated, in higher
level occupations, more likely to be employed full time and to have
high incomes. Patients who consult alternative practitioners are also
more likely to report their ethnic origin as Canadian, to have no formal
religious affiliation but on the other hand, to consider spirituality
an important factor in their lives. This demographic profile of patients
of alternative practitioners is consistent with other research in Canada,
the United States and in the United Kingdom (Wellman, 1995; CTV/Angus
Reid Group, 1997; Blais, 1997; Eisenberg et al., 1993; Thomas et al.,
1991; Sharma, 1992; Vincent and Furnham, 1997). The key identifying
social characteristics in the work of these scholars are gender, level
of education, occupational level, social class and age. The fact that
patients of family physicians are not as well educated or as affluent
as CAM patients implies that they will adopt a more deferential, less
independent stance in their therapeutic relationships.
Primary health problems - There are also differences in
the type of health problems reported by the two groups of patients.
Patients of family physicians most frequently mentioned life threatening
problems such as heart problems, high blood pressure and high cholesterol
while none of the alternative patients reported cardiovascular conditions
as their main reason for seeking care from their practitioners. Patients
consulting alternative practitioners were seeing them for chronic conditions
like musculoskeletal problems, headaches and for health maintenance.
In a national survey of the health conditions of patients of alternative
practitioners in the United States, Eisenberg et al. (1993, 1998) confirm
that most conditions are minor and chronic, with musculoskeletal problems
being the most common presenting problem. Since the health problems
of family physician patients are more life threatening and worrisome
than the chronic complaints of CAM patients, these health problems may
influence patient expectations and their reliance on the expertise and
authority of their physicians.
As might be expected, there were also variations between
the alternative groups, For example, patients of chiropractors were
most likely to seek care for musculoskeletal problems and patients of
Reiki practitioners were most apt to be concerned about their emotional
health and maintaining and improving their overall well-being. The patients
of naturopathic practitioners reported the broadest range of ailments,
including colds, flu, allergies, chronic infections and gynaecological
troubles
The CAM patients in the study used medical care as a supplement
rather than a substitute for their alternative care; 82% of them said
they saw their family physician at least once a year for checkups, colds
and flu, monitoring of medications and any life-threatening illnesses
that might occur. Most of them (88%) said they were happy with their
family physicians in general, but that they had been unable to resolve
the specific problem for which they were currently seeking help. In
the light of these differences of social characteristics and health
profiles, this study asks whether there are also differences in the
therapeutic relationship that these patients are experiencing with their
physicians or CAM practitioners.
Comparing the Nature of the Therapeutic Relationship
Family physicians and their patients
A typical setting for the doctor patient relationship
is formal and often institutional. The physician wears a white coat
and practices in a professional office with a receptionist or nurse
who sees the patients first. When patients are ushered into their physician's
office, the doctor usually sits behind a desk and takes control of the
interaction, posing a series of questions to the patient allowing little
time for response . If a physical examination is required, patients
move to another room, usually removing at least some of their clothing,
and then return to the doctors office to learn their diagnosis
and hear the recommended treatment. This kind of setting contributes
to social distance and establishes the physician's authority in the
healing process.
Despite this portrayal, most of the family physicians
patients in this study reported that they had a positive relationship
with their doctors. Most of their relationships developed over a long
period of time (mean number of years=9.7 and the median= 7.0). Close
to one fifth (18%) of them had been seeing the same physician for 20
years or more. Over the years, it was quite clear that the patients
had built up an association based on shared health experiences and the
ease that stems from repeated encounters. These patients did not consult
their doctors often, however; as one patient put it: "He wouldn't
make a living on how many times we went to him." Forty per cent
of the patients of family physicians said that in the past, they had
seen them only once or twice a year for routine visits or for emergencies,
although they were now seeing them more frequently because their current
problem was causing them considerable discomfort and anxiety (almost
half of them, 48%, were going as often as once a month or more). The
family physicians patients reported that they had been suffering
with their problem for a while; the mean number of years was 6.6 and
the median was 3.0. Thus, the data show that the typical physician-patient
relationship is characterized by repeated visits over long periods of
time rather than by frequent encounters in a short period of time.
This group of patients reported good working relationships
with their family physicians. Almost all of them (90%) said that their
physician had fully met their expectations. The vast majority (88%)
reported that their family physicians were always willing to answer
their questions and over three quarters of them (78%) said they were
given clear and complete explanations about treatments. Most (83%) felt
that their physician understood their perspective on their health problem.
When it came to explaining the potential side effects
of recommended therapies, satisfaction was not as high; only 58 per
cent said that their family physician always did this. Under half (48%)
of the patients felt that their physicians were willing to involve them
in decision-making about their health care. Nevertheless, an overwhelming
majority (92%) said they would recommend their doctor to others with
similar problems.
When asked why they thought their physician was helping
them, these patients gave several reasons. The most frequently cited
(43%) was that they had trust in the doctor's diagnostic knowledge,
authority and technical skills as well as in the medications he/she
had recommended. One patient put it like this: "My doctor is a
man I trust; he knows what he's doing and he does it well" . The
next most often (38%) mentioned reason was that they had a sense of
rapport with their doctor. This rapport, they said, was based on their
belief that the physician was supportive and interested in learning
the facts about their health problems. As one patient said "My
doctor is caring and understanding. He has helped me through my crises
".
Finally, the patients were asked who they thought would
be the most helpful with their health problems in general. A majority
(70%) of the family physician patients said that they relied primarily
on their doctors to help them. These patients can be described as having
an external locus of control (Wallston et al., 1976) They feel that
their health is beyond their personal control and rely on fate or powerful
others, particularly physicians. Just over one quarter (27%) mentioned
themselves, or themselves in partnership with their doctors, as the
persons they would find most helpful. When asked to explain why they
thought their physician was the most helpful person, trust in his/her
training and medical expertise was the most frequent response. They
also mentioned the fact that doctors can refer patients to the best
specialists when they are needed and that their physician has known
them for a long time and is thus in a good position to help them.
The surprising finding here is that so many patients of
family physicians reported that they had a good sense of rapport with
them. In contrast to the studies cited above, where patients complained
of a lack of interest and impersonal treatment, this was not the case
for the family physicians patients in this study.
How do these findings compare to the way the CAM patients
describe their relationships with their practitioner?
CAM practitioners and their patients
CAM practitioners are not a homogeneous group; their practice
patterns differ according to type of modality and also within each modality.
Nevertheless, for purposes of analysis, the four types of CAM practitioners
are mainly treated here as one group, although from time to time, the
more striking differences between them are identified.
In comparison to the settings of the physician-patient
encounter, CAM practitioners meet their patients in a less formal and
structured environment. The practitioner may practice in an office or
at home (chiropractors are more likely than homeopaths or Reiki healers
to work in offices), but even in offices, the ambience is informal,
with personal touches provided by signs and childrens' drawings on the
walls. Most CAM practitioners eschew white coats and present themselves
in a more informal manner. Some do not even use a desk, but prefer to
sit close to their patients without any barriers between them. History
taking, diagnosis and treatment often take place in the same room and
the whole interaction seems more like a visit than a consultation.
The CAM patients in the study had been seeing their practitioners
for a much shorter length of time than was the case for patients of
family physicians (mean=3.2 and median=1.0). This difference can be
attributed, at least in part, to the recent growth of interest in using
alternative health care. A recent Canadian poll ( CTV/Angus Reid Group,
1997) reveals that of the 42% of Canadians now using alternatives, just
under one half (49%) had started using them within the last five years.
Another factor that may explain the shorter duration of the relationship
between the CAM patients and their practitioners is that the patients
had been trying various kinds of treatments to resolve their chronic
problems without receiving much respite and had only recently decided
to try this particular type of practitioner. As an acupuncture patient
told us "This whole sequence of events, going from one doctor to
another has been going on for about ten years. I've only recently been
seeing the acupuncturist, but I've always believed my problem was solvable".
The pattern for CAM patients seems to be that most had suffered with
their primary health problems for a considerably longer period of time
than the patients of family physicians (mean=9.2 and median=5.0). This
suggests that they had already tried a number of other kinds of practitioners
without finding relief.
What the relationships between CAM patients and their
practitioners lacked in duration, they made up for in frequency of contact.
CAM patients had not been consulting their practitioners for as long
a period of time, but the frequency of their visits was much greater
than it is for the patients of family physicians. When CAM patients
began their treatments, the frequency of visits tended to be much higher
at the beginning, compared to later in the treatment process. The data
reflect this pattern by showing that in the past, more than half ( 52%)
of the group of CAM patients in the study saw their practitioners at
least once a week. Currently, only 29% were visiting them that frequently,
while another quarter (25%) were seeing them a few times a month. The
frequency of these visits is related to the type of problem as well
as the type of treatment. For example, patients of chiropractors and
acupuncture/traditional Chinese doctors see them more often than do
patients of naturopaths and Reiki healers, and they typically suffer
more from chronic pain. The fact that most kinds of CAM treatments require
repeated visits, creates a situation that fosters the development of
personal relationships quickly.
The data make it clear that the relationships between
doctors and their patients and CAM patients and their practitioners
evolve over different time periods and entail different degrees of frequency.
Like the family physician patients, the CAM patients
expressed high levels of satisfaction with their current practitioners;
86% of the total group felt that their practitioner was fully meeting
their expectations. There were, however, some variations between the
CAM groups; more of the patients of chiropractors (90%) and Reiki practitioners
(98%) reported that they were fully satisfied than did the other CAM
patients.
Most CAM patients (85%) said that their practitioner always
was willing to answer their questions; close to three quarters of them
(71%) reported that their practitioners always gave them clear explanations
about their health problems; just under half of them (47%) found that
their practitioner always explained the side effects of their treatments;
most (82%) felt that their practitioner understood their perspective
very well and 60 per cent reported that their practitioner always involved
them in the decisions about their treatment. Almost all (94%) agreed
that they would recommend their practitioner to others with similar
problems.
Variations between the different groups of CAM patients
were evident in these assessments of practitioners. The clients of Reiki
healers were most likely to report that their practitioner fully met
their expectations and in most cases it was the Reiki practitioners
who ranked highest on issues such as answering questions, understanding
the patient's perspective and involving patients in decision making.
At the other end of the spectrum were the acupuncturists/traditional
Chinese doctors who ranked lower on these questions than the rest of
the CAM practitioners.
When asked why they thought their practitioner was helping
them, the responses of the CAM patients were much more pragmatic than
the patients of family physicians. Over half (53%) said it was because
they were seeing positive results. As a chiropractic patient said: "Now
I can finally turn my head. He's getting to the root of the problem
and not just treating symptoms". A Reiki client put it this way:
"After the treatment I feel better, looser---as if I have just
had a lubrication job in my joints".
Less than one quarter (22%) of the CAM patients in the
study cited trust in the practitioner's skills and knowledge as the
principal reason they believed they were being helped; next most often
mentioned was rapport (16%), followed by a natural/holistic approach.
Differences between the various alternatives were again evident; over
three quarters (78%) of the patients of chiropractors mentioned positive
results, compared to about one third of the patients of naturopaths
(37%) and Reiki healers (30%). The lower ranking of Reiki on the dimension
of positive results is particularly interesting in view of the high
levels of satisfaction with Reiki practitioners reported above. Clearly,
there were other, perhaps more personal reasons for this satisfaction.
The patients of CAM practitioners had more independent
and self reliant views than the family physician patients concerning
who they believed would be the most helpful with their health problems.
Only one fifth (20%) of CAM patients specifically mentioned a physician
and only 6 per cent mentioned a practitioner with a natural or holistic
approach. The majority (65%) said they would rely most on themselves,
or on themselves plus a health care provider of one kind or another.
A Reiki patient explained that: " I left my doctor and went to
an alternative because he didn't like the fact that I was a thinker.
Most of these doctors don't like people who think and want to take care
of themselves. It's that sort of feeling that drove me to find an alternative
".
This belief of patients in their own ability to influence
their health has been described as an internal health locus of control
(Roter, 1977; Wallston et al., 1976). People who have this kind of orientation
perceive their health status as largely under their own personal control.
CAM patients reported more confidence in their own ability to influence
their health. It was patients of Reiki practitioners who most often
expressed this trust in themselves as healer (58% self, and 22% self
plus a practitioner), and they also reported the least faith in doctors
as healers (only 8%). Patients of chiropractors showed the least faith
in themselves (25%) or themselves plus the practitioner (25%) as resolvers
of their health problems.
The CAM patients explained their reliance on themselves
in several ways. They believed the primary responsibility for decisions
about their own care rested with themselves and that they were the ones
who could best practice prevention. They argued that each kind of practitioner
has distinctive skills and expertise and that they wanted to select
different healing options, depending on their particular situation.
They claimed that self-knowledge assists healing and declared that because
they knew their own bodies best, they trusted their own judgement more
than the judgement of anyone else. This faith in their own instincts
and knowledge of their bodies was largely responsible for the tendency
to demphasize the place of trust in their relationships with their CAM
practitioners.
CAM patients reported that they typically worked as partners
with their practitioners in the healing process. Most CAM practitioners
employ a holistic approach to treatment which focuses on the emotional
and spiritual well-being of their patients, as well as their physical
health. They also see each patient as unique, requiring individual assessment
and treatment. They rely on input from their patients to keep them informed
about changes in lifestyles, moods and attitudes. The CAM patients said
their practitioners knew their situations intimately and tried to tailor
their advice to fit the patient's life, rather than expecting him/her
to adapt to a standard set of recommendations. In turn, CAM patients
played their part in the healing process by accepting responsibility
for their own care; they were more likely than physician patients to
pay attention to their diet, posture, sleep patterns and exercise regimens.
Although both groups of patients expressed satisfaction
with their current practitioners, they frequently had negative comments
about the relationships they had with the health care providers they
had seen in the past (mainly specialist physicians but also some CAM
practitioners).
Past Experience
Reasons for dissatisfaction with past therapeutic relations
related both to patients' expectations about receiving help and also
to the way they were treated. They complained that their previous physicians
or CAM practitioners were unable to give them relief from their health
problems, or that the help they received was only short-lived. Other
complaints, directed primarily at medical specialists, included inadequate
or mistaken diagnoses, not being listened to or treated with respect,
being rushed, lack of interest in their specific situation and too great
a reliance on drugs and surgery instead of trying to get to the root
of the problem.
For example, a woman who was currently consulting a Reiki
practitioner told us "I went to see this neurologist; he was supposed
to be so good, and I wrote down a list of the symptoms I had and everything.-----He
didn't even look at it. I was there all of five minutes.----he just
handed the list back to me and was writing out a prescription for me,
for nerves or something. I tore out of there and I tore up his prescription.
He didn't even listen to my problem, you know .
The fact that the patients expressed considerable dissatisfaction
with their previous health care providers is not surprising. If they
had received the help they sought and had been able to develop a positive
therapeutic relationship they would not have decided to look elsewhere.
What we do not know is how the patients will feel in the future about
their current physicians or CAM practitioners if they fail to meet their
expectations. This research captures patients at only one point in their
search for improved health and thus can not reveal the whole story.
Discussion
Physicians and their patients relate to one another within
the framework of the biomedical model, whereas CAM practitioners relate
to their patients within a more holistic framework. Yet this study shows
that in some ways, the relationships between CAM patients and their
practitioners do not differ much from the relationships between family
physician patients and their doctors. Both groups reported overall satisfaction
with their health care providers and said they would recommend them
to others. Both groups found care givers who will usually answer their
questions, give them explanations, understand their perspective and
to a lesser extent, involve them in decisions concerning their health
care. It is important to remember that the respondents for this study
were recruited in the offices of their health care providers and are
thus likely to be satisfied consumers. Unfortunately, we do not know
how those who have departed due to dissatisfaction would feel about
their caregivers.
Where the two groups of respondents differed most was
in the basis for their satisfaction. While only a small percentage of
the physician patients were getting positive results from their current
treatment, most of them nevertheless expressed trust in the skills and
expertise of their doctors and some also mentioned rapport with them
as an important element in the healing process. The CAM patients, on
the other hand, placed most emphasis on positive results such as less
pain and discomfort. Their relationships with their practitioners were
largely pragmatic; if the practitioners could help them, they would
continue to see them; if not, they would move on to try another practitioner
or another kind of therapy.
The other major difference between the groups of patients
was the role they saw for themselves in the healing relationship. While
almost all respondents expected to have input into decisions about their
care, there were differences in emphasis. Most family physician patients
believed that their doctors should play the key role. CAM patients,
on the other hand, typically believed each patient should have the main
responsibility for their own health and decisions about which kind of
treatment to pursue. Whereas physicians patients favoured provider-control
and placed their trust in their doctors, CAM patients more often favoured
self-control and placed their confidence in themselves, or in themselves
in partnership with their practitioners.
These findings indicate that the popularity of CAM practitioners
can be attributed in large part to the search for relief from persisting
chronic conditions. These patients want a practitioner who can help
them cope with their ongoing problems. While physicians have had extraordinary
successes with many acute illnesses such as polio, pneumonia and heart
conditions, they have not been able to offer much assistance to their
patients who suffer with chronic problems. Medicine continues to rely
on its existing armamentarium of solutions such as drugs and surgery
for conditions which require different and less drastic approaches.
Physicians often discourage patients from presenting painful chronic
conditions as their primary problems because there is little they can
do to help.
The explanation presented at the beginning of this chapter
that it is the more intimate and sympathetic style of interaction employed
by CAM practitioners that explains their popularity was not upheld by
the findings. Instead, they emphasize the continuing search for relief
from chronic problems. This finding throws doubt on the claim that it
is the response of CAM patients to their practitioners' holistic interest
in them that is the chief reason for the ability of CAM to help chronic
illness. While there is no question that patients' perceptions of the
nature of the therapeutic relationship can have a significant influence
on the outcome of their treatments, all kinds of interventions--medical
and alternative, have a degree of placebo effect on the healing process
(Lewith and Aldridge, 1993; Goldstein, 1999).
When we look at the continuum of care delineated by the
three models of the doctor-patient- relationship: (1) paternalistic,
(2) shared decision-making and (3) consumerist, we see that each model
directs attention to different aspects of how the therapeutic relationship
is structured. The paternalistic model was only minimally evident in
the reports of the current experiences of all the patients, although
one key element of the paternalistic model was still apparent in the
relationship between most family physicians and their patients. It was
the physicians who made the decisions about treatments and the patients
who trusted in these decisions.
Paternalism was clearly evident, however, when it came
to the stories that both groups of patients recounted about their past
experiences with medical specialists. In many instances they reported
evasion of their questions, limited communication, and complete physician
control of decision-making. A distinction was thus apparent in the type
of relationship the patients experienced with family physicians, as
compared to the more authoritarian and remote medical specialists they
had consulted.
It was the mid-point on the continuum, the shared decision-making
model, that best reflected the relationships of most patients with their
health care providers. Both groups reported that they typically shared
clinical information with them, communicated well and proffered emotional
support. The model fitted therapeutic relationships with CAM practitioners
more closely, however, due to the partnership role they took with patients,
particularly around psychosocial issues and recommended lifestyle changes.
At the far end of the continuum, the consumerist model
was reflected in the desire of both kinds of patients to find a successful
resolution to their chronic problems. This was particularly apparent
when patients spoke of their past health care experiences. The pattern
was that if the practitioner was found to be unable to help them, or
failed to respect them and their opinions about treatment, most decided
to act as "smart consumers" and search for another physician
or CAM practitioner who would listen more attentively and make more
appropriate, individualized recommendations.
To reiterate, most of the relationships experienced by
patients in this study fall somewhere in the middle of the continuum.
Paternalism appears to be disappearing for family physicians, who are
relating to their patients in more open ways. The authority of the physician
over health care decisions is no longer as influential. They are not,
however, assuming partnership roles with their patients to the same
extent that characterizes therapeutic relationships with CAM practitioners
and their patients. An interesting question for the future is whether
patients of family physicians will come to expect the same kind of consultative
and egalitarian relationship from their doctors that they have been
experiencing with their CAM practitioners.
This study demonstrates that models of the practitioner-patient-relationship
that were developed solely on the basis of doctors and their patients
can be expanded to apply to relationships with patients and CAM practitioners
as well. While the models do not fit the realties of health care perfectly,
they do direct our attention to salient points concerning the ways in
which both physicians and CAM practitioners relate to their patients,
and they also enable us to see interesting differences between various
types of CAM practitioners.
Conclusion
The key finding here is that while there are overarching
differences in the nature of the therapeutic relationship that exists
in medicine and in alternative care, both kinds of relationships are
nevertheless positive and valuable, and not mutually exclusive. The
physician relationship is based primarily on trust in expertise, while
the CAM relationship is based principally on partnership in healing.
The opportunity to take an active role may well be part of the attraction
of CAM for patients. The research reported here, however, indicates
that their primary motivation is the continuing search for relief from
chronic problems. This motivation is not restricted to Canadians who
use CAM, but also applies to patients in Britain, the United States
and other countries where CAM is currently popular.
Further research on the nature and significance of the
therapeutic relationship in CAM is needed to flesh out the picture portrayed
here. Rather than rely on patients accounts of past and present
health care experiences, scholars can pursue this topic in depth through
use of tape recorders and video cameras during the actual encounters,
as Mishler and his colleagues have done for the doctor-patient- relationship
(Mishler, 1984). Analysis of the content, the tone and the timing of
the consultation between CAM practitioners and their patients can reveal
the nuances of the dynamics involved in the healing encounter. Some
questions that could be answered using these research methods include:
(1) Do different types of CAM practitioners have different kinds of
therapeutic relationships with their patients?, (2) Do age, gender,
and cultural differences generate different kinds of therapeutic relationships
with a CAM practitioner?, (3) At what point in the treatment process
do CAM patients show an interest in the healing philosophy of their
practitioners?, (4) Do the characteristics of the therapeutic relationship
vary according to different societal conditions and contexts? and (5)
Will the increasing professionalization of CAM practitioners change
the dynamics of the therapeutic encounter in the future? The nature
of the relationship between patients and their CAM practitioners has
yet to be fully identified.
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ENDNOTE
[1] In the Canadian national health
insurance scheme, all medical services are covered by government insurance.
Alternative care, on the other hand, is paid for by patients out of
their own pockets, with the partial exception of chiropractic.
[2] It is important to recognize that
there is some overlap between the groups being analysed here. Several
investigators have shown that individuals do not abandon conventional
medicine when they use alternative therapies (Lewith et al, 1996; Kelner
and Wellman, 1997a; Eisenberg et al, 1993, 1998; Vincent and Furnham,
1997). Many use both, either sequentially or at the same time. Moreover,
some patients may simultaneously consult more than one alternative practitioner
for their current complaint. It is also true that many alternative practitioners
and even some family physicians are qualified in more than one discipline
and may utilize a mixture of therapeutic practices in treating an individual
patient. In spite of these complications, for purposes of analysis the
patient groups in this study have been defined according to the type
of practitioner in whose office they were first contacted.